XLP or Ducans Disease Resource Site (Health/Blood_Disorders)
teamhartley.co.uk

Description: Xlinked Lymphoproliferative Syndrome (XLP) or Duncans syndrome. A family site with resources and news for 4 sons who suffer from this disease.In late November 2003 the 4 Hartley sons (Joshua 12 , Nathan 10, Daniel 8 and Luke 4) were diagnosed with a rare genetic conditions known as XLinked Lymphoproliferative Syndrome (XLP) or Duncan Disease. This is very rare with only around a 100 families world wide being diagnosed (although it is believed that XLP is massively under prescribed). Without treatment it is unlikely that the boys will make it into and through their teen years. The cure treatment is a Bone Marrow Transplant

Specializes in: hartley joshua nathan daniel luke xlinked lymphoproliferative syndrome xlp duncans disease bone marrow transplant duncans bmt

Website owner:

Domain name:
teamhartley.co.uk
Registrant:
Allison Hartley
Registrant type:
UK Individual
Registrants address:
60 Winchester Road
Romsey
Hampshire
SO51 8JA
GB
Registrants agent:
Coveria Limited [Tag = COVERIA]
URL: http://www.xreg.co.uk
Relevant dates:
Registered on: 04-Mar-2004
Renewal date: 04-Mar-2006
Last updated: 10-Aug-2004
Registration status:
Registered until renewal date.
Name servers:
ns1.xreg.co.uk
ns2.xreg.co.uk