Ectodermal Dysplasia Society (Health/Skin_Disorders)
ectodermaldysplasia.org
Description: Information about the organization as well as the ED condition. Includes links, news... articles and contact details.Ectodermal Dysplasia Society a support group for people with ED
Specializes in: ectodermal dysplasia society ed ectodermal dysplasia british ectodermal dysplasia support group... national

The Ectodermal Dysplasia Mailing List (Health/Skin_Disorders)
hometown.aol.com
Description: Includes instructions on joining the list, FAQs and links to further resources.Ectodermal... Dysplasia mailing list: The Ectodermal Dysplasia Mailing List and this web site are contributed to and maintained by individuals who have been touched by Ectodermal Dysplaysia. Many of the postings deal with the ways these individuals have handled their Ectodermal Dysplasia. You are welcome to contribute to the discussion and take whatever information you find useful. Please remember: this List and web site are not affiliated with any medical group, hospital or physician. Any advice or suggestions you gain from these postings are to be used at your own risk
Specializes in: ectodermal dysplasia ed anhidrotic ectodermal dysplasia christsiemenstouraine syndrome hypohidrotic ectrodactyly cleft lip cleft palate... xlinked xhed

The Andy Fund (Health/Skin_Disorders)
andy.org.mx
Description: Describes the health condition of a boy who was born with ectodermal dysplasia with... immune deficiency caused by a mutation on the fourth part of the NEMO gene.The andy fund. The story of a brave boy born with a primary immune deficiency caused by a mutation on the nemo gene. Story of his hospitalizations and constant battle against infeccions, support from his family and friends including fund raising efforts. Thanks to the collaboration of more than 60 doctors and laboratories in the United States and Mexico Andy has his diagnosis and a bone marrow transplant or genetic theraphy may help him live a normal life
Specializes in: the andy fund primary immune deficiency immune system nemo gene ectodermal dysplasia pedriatrics immunology gastroenterology... genetics inmunologia