The Albinism Fellowship UK (Health/Skin_Disorders)
albinism.org.uk
Description: Voluntary organisation that aims to provide information, advice and support, for... people with Albinism.The Albinism Fellowship, a group that provides information, advvice and support for people with albinism
Specializes in: albinism albino albinos albeenism albanism albeno albenism fellowship... visual genetic

PINSA, Primary Immunodeficiency Network of South Africa (Health/Immune_Disorders)
pinsa.org.za
Description: Support for patients and families affected by PID. Includes patient stories, disease... facts and diagnostic help
Specializes in: primary immunodeficiency immune blood disease immunology scid hyper igm xlinked autosomal recessive... genetic hereditary

Genetic Disorders: The Links to Diet (Health/Genetic)
ctds.info
Description: Explores the role of diet in birth defects and genetic disorders. Includes nutritional... links to disorders such as Down syndrome, cerebral palsy, homocystinuria, and cystic fibrosis.Explores role of diet and nutrition in birth defects and genetic disorders
Specializes in: genetic disorders birth defects diet genes inherited genetic environment nutrition... folic acid

Rett Syndrome Association (UK (Health/Neurological_Disorders)
rettsyndrome.org.uk
Description: The Rett Syndrome Association UK, a registered charity, is dedicated to the support... of girls and women, together with their families and carers, suffering from this complex neurological disorder, which affects them throughout their lives. Sufferers are profoundly and multiply disabled.Rett Syndrome Association UK website home page
Specializes in: rett rhett syndrome uk neurological genetic gene girls... boys help

The UDGD Spot (Health/Genetic)
camp-a-roo.com
Description: Resources and information for families of children with genetic disabilities or syndromes... that are still awaiting a diagnosis.Information and support for families of infants or children with undiagnosed genetic disordes or very rare synromes
Specializes in: rare genetic diseases children genetic disease disease lysosomal storage disease forum... chat lysosome

EB Info World (Health/Skin_Disorders)
ebinfoworld.com
Description: Information, mailing list, pictures, and help for new parents.the mother of a child... with a dreadful and devastating genetic skin disorder called epidermolysis bullosa eb recessive dystrophic hallopeau siemensoffers not only advice and help in taking care of these babies and children but also has pages that show pictures of the children, memorials along with extensive information about the disorder
Specializes in: mother children babies epidermolysis bullosa eb blisters blistering... wounds genetic