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PINSA, Primary Immunodeficiency Network of South Africa (Health/Immune_Disorders)
pinsa.org.za
Description: Support for patients and families affected by PID. Includes patient stories, disease... facts and diagnostic help
Specializes in: primary immunodeficiency immune blood disease immunology scid hyper igm xlinked autosomal recessive... genetic hereditary
Primary Immunodeficiency Association (Health/Reproductive_Health/AIDS)
pia.org.uk
Description: British information and support group for primary immunodeficiencies and other disorders... of the immune system.Common Variable Immunodeficiency CVID, Hypogammaglobulinaemia, Agammaglobulinaemia, Severe Combined Immunodeficiency SCID and Xlinked SCID, Neutropenia, Hereditary Angioedema HAE, Xlinked agammaglobulinaemia Brutons Disease XLA, WiskottAldrich Syndrome, IgG subclasses, IgA deficiency, Hyper IgM, Selective IgA deficiency, Selective IgG subclass deficiences, Xlinked Lymphoproliferative Syndrome Duncans Syndrome, C1 esterase inhibitor deficiency, Hyper IgE Syndrome Jobs Syndrome
Specializes in: common variable immunodeficiency cvid hypogammaglobulinaemia agammaglobulinaemia severe combined... scid xlinked
The Ectodermal Dysplasia Mailing List (Health/Skin_Disorders)
hometown.aol.com
Description: Includes instructions on joining the list, FAQs and links to further resources.Ectodermal... Dysplasia mailing list: The Ectodermal Dysplasia Mailing List and this web site are contributed to and maintained by individuals who have been touched by Ectodermal Dysplaysia. Many of the postings deal with the ways these individuals have handled their Ectodermal Dysplasia. You are welcome to contribute to the discussion and take whatever information you find useful. Please remember: this List and web site are not affiliated with any medical group, hospital or physician. Any advice or suggestions you gain from these postings are to be used at your own risk
Specializes in: ectodermal dysplasia ed anhidrotic ectodermal dysplasia christsiemenstouraine syndrome hypohidrotic ectrodactyly cleft lip cleft palate... xlinked xhed

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